Abstract

Youth with cystic fibrosis must gradually assume considerable self-care management skills in order to optimize longevity and quality of life, and healthcare providers and caregivers play a role in youth gradually assuming these skills. The purpose of this study was to determine how youth with cystic fibrosis perceive their self-care management skills required for transition to adult healthcare, the relationship between age and skill acquisition, youth and caregiver congruence on perceived transition readiness, and frequency of transition discussion with provider. In this descriptive, correlational, cross-sectional design, 58 youth ages 14-22 rated their skill ability in managing cystic fibrosis using the Transition Readiness Assessment Questionnaire (TRAQ) during visits to the cystic fibrosis clinic. Using an adapted version of the questionnaire, the TRAQ-C, 52 caregivers also rated youth readiness to transition to determine congruence in self-care management ability. Five simple regressions were calculated to determine age effects for the self-care management skills. Independent t-tests were used to compare mean scores of youth and caregiver perceptions of self-care management skills. Age predicted youth perception of readiness for self-care management skills. Youth scored significantly higher than their caregivers did in perception of self-care skill management. Study findings suggest that preparation for transition to adult care should begin at an earlier age to prepare youth to assume self-care. Including transition discussion with youth and caregiver assessments using questionnaires such as the TRAQ and TRAQ-C may guide learning of skills and timing of transition to adult health care.

Notes

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Graduation Date

2016

Semester

Spring

Advisor

Chase, Susan

Degree

Doctor of Philosophy (Ph.D.)

College

College of Nursing

Department

Nursing

Degree Program

Nursing

Format

application/pdf

Identifier

CFE0006133

URL

http://purl.fcla.edu/fcla/etd/CFE0006133

Language

English

Release Date

May 2016

Length of Campus-only Access

None

Access Status

Doctoral Dissertation (Open Access)

Restricted to the UCF community until May 2016; it will then be open access.

Included in

Nursing Commons

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