Community Needs, Concerns, and Perceptions About Health Research: Findings From the Clinical and Translational Science Award Sentinel Network

    Authors

    L. B. Cottler; D. J. McCloskey; S. Aguilar-Gaxiola; N. M. Bennett; H. Strelnick; M. Dwyer-White; D. E. Collyar; S. Ajinkya; S. D. Seifer; C. C. O'Leary; C. W. Striley;B. Evanoff

    Comments

    Authors: contact us about adding a copy of your work at STARS@ucf.edu

    Abbreviated Journal Title

    Am. J. Public Health

    Keywords

    AFRICAN-AMERICANS; RACE; PARTICIPATION; RECRUITMENT; MINORITIES; TUSKEGEE; WORKERS; TRIALS; Public, Environmental & Occupational Health

    Abstract

    Objectives. We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations. Methods. Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions. Results. Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%). Conclusions. Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.

    Journal Title

    American Journal of Public Health

    Volume

    103

    Issue/Number

    9

    Publication Date

    1-1-2013

    Document Type

    Article

    Language

    English

    First Page

    1685

    Last Page

    1692

    WOS Identifier

    WOS:000330998200042

    ISSN

    0090-0036

    Share

    COinS