Decisions and Caregiving: End of Life Among Blacks From the Perspective of Informal Caregivers and Decision Makers

    Authors

    N. E. Conner;S. K. Chase

    Comments

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    Abbreviated Journal Title

    Am. J. Hosp. Palliat. Med.

    Keywords

    end of life; decision making; caregiving; blacks; focus groups; qualitative; AFRICAN-AMERICANS; MEDICAL-CARE; BEHAVIORAL-MODEL; ADVANCED CANCER; RACE; FAMILIES; MATTERS; Health Care Sciences & Services

    Abstract

    This focus group study describes end-of-life caregiving and decision making among blacks from the perspective of the informal caregivers and decision makers. The Behavioral Model of Health Services Use framed the study. Five focus groups with a total of 53 informal caregivers/decision makers were conducted. A qualitative phenomenological approach was used for the data analysis. Findings are presented under the themes of end of life caregiving and decision making roles, dynamics and process, and beliefs and values. The common thread of care giving and decision-making within relationship and six subthemes were identified. Findings also suggest the need for support and inclusion of designated informal caregivers and decision-makers in the advance care planning process early in the disease trajectory.

    Journal Title

    American Journal of Hospice & Palliative Medicine

    Volume

    32

    Issue/Number

    4

    Publication Date

    1-1-2015

    Document Type

    Article

    Language

    English

    First Page

    454

    Last Page

    463

    WOS Identifier

    WOS:000354266700013

    ISSN

    1049-9091

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