Health Care Transition For Young Adults With Type 1 Diabetes: Stakeholder Engagement For Defining Optimal Outcomes

Keywords

health care transition; transition outcomes; type 1 diabetes; young adulthood

Abstract

Objectives Research on the transition to adult care for young adults with type 1 diabetes (T1D) emphasizes transition readiness, with less emphasis on transition outcomes. The relatively few studies that focus on outcomes use a wide variety of measures with little reliance on stakeholder engagement for measure selection. Methods This study engaged multiple stakeholders (i.e., young adults with T1D, parents, pediatric and adult health care providers, and experts) in qualitative interviews to identify the content domain for developing a multidimensional measure of health care transition (HCT) outcomes. Results The following constructs were identified for a planned measure of HCT outcomes: biomedical markers of T1D control; T1D knowledge/skills; navigation of a new health care system; integration of T1D into emerging adult roles; balance of parental involvement with autonomy; and "ownership" of T1D self-management. Discussion The results can guide creation of an initial item pool for a multidimensional profile of HCT outcomes.

Publication Date

10-1-2017

Publication Title

Journal of Pediatric Psychology

Volume

42

Issue

9

Number of Pages

970-982

Document Type

Article

Personal Identifier

scopus

DOI Link

https://doi.org/10.1093/jpepsy/jsx076

Socpus ID

85030770302 (Scopus)

Source API URL

https://api.elsevier.com/content/abstract/scopus_id/85030770302

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