Keywords
Quality of Life; Elderly Adults with Down syndrome; Caregivers of Elderly Adults with Down syndrome; Caregivers; Down syndrome; Caregiver quality of life
Abstract
This research studied the quality of life of informal caregivers of aging and elderly adults with Down syndrome. Prior research indicates some degree of deteriorating Quality of Life (QoL) for caregivers, however, there is no empirical research isolating the aspect QoL affected. This study seeks to research the following two questions: 1) What are the trends in the four domains that influence Quality of Life, both positively and negatively, of informal caregivers of aging and elderly adults with Down syndrome? and 2)What supports do caregivers of aging and elderly adults with Down syndrome want to improve their own Quality of Life? The methodology is a Qualtrics questionnaire administering the WHOQOL-BREF to caregivers of the aging (30-39 years old) and elderly (40+ years old) individuals with Down syndrome. The results showed that informal caregivers caring for elderly adults with Down syndrome lowest Quality of Life domain was social and highest Quality of Life domain was physical. Informal caregivers caring for aging adults with Down syndrome lowest Quality of Life domain was physical and highest Quality of Life domain was environmental.
Thesis Completion Year
2024
Thesis Completion Semester
Spring
Thesis Chair
Caroline Pratt Marrett
College
College of Community Innovation and Education
Department
Community Innovation and Education
Thesis Discipline
Education
Language
English
Access Status
Open Access
Length of Campus Access
None
Campus Location
Orlando (Main) Campus
Subjects
Caregivers--Research; Quality of life--Research; Down syndrome--Patients--Care; Caregivers--Psychological aspects; Older caregivers
STARS Citation
Latorre-Lagos, Isabel E., "Caring for the Caregiver: A Study on the Quality of Life of Informal Caregivers of Aging and Elderly Adults with Down Syndrome" (2024). Honors Undergraduate Theses. 70.
https://stars.library.ucf.edu/hut2024/70
Included in
Disability and Equity in Education Commons, Disability Studies Commons, Special Education and Teaching Commons
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