Keywords

Quality of Life; Elderly Adults with Down syndrome; Caregivers of Elderly Adults with Down syndrome; Caregivers; Down syndrome; Caregiver quality of life

Abstract

This research studied the quality of life of informal caregivers of aging and elderly adults with Down syndrome. Prior research indicates some degree of deteriorating Quality of Life (QoL) for caregivers, however, there is no empirical research isolating the aspect QoL affected. This study seeks to research the following two questions: 1) What are the trends in the four domains that influence Quality of Life, both positively and negatively, of informal caregivers of aging and elderly adults with Down syndrome? and 2)What supports do caregivers of aging and elderly adults with Down syndrome want to improve their own Quality of Life? The methodology is a Qualtrics questionnaire administering the WHOQOL-BREF to caregivers of the aging (30-39 years old) and elderly (40+ years old) individuals with Down syndrome. The results showed that informal caregivers caring for elderly adults with Down syndrome lowest Quality of Life domain was social and highest Quality of Life domain was physical. Informal caregivers caring for aging adults with Down syndrome lowest Quality of Life domain was physical and highest Quality of Life domain was environmental.

Thesis Completion Year

2024

Thesis Completion Semester

Spring

Thesis Chair

Caroline Pratt Marrett

College

College of Community Innovation and Education

Department

Community Innovation and Education

Thesis Discipline

Education

Language

English

Access Status

Open Access

Length of Campus Access

None

Campus Location

Orlando (Main) Campus

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Rights Statement

In Copyright